Now onto the F'ing Hurt bit!!!
If you have been reading here for a while you will know that I have a couple of types of arthritis, and pain - especially if standing or walking for long, is something I have become familiar with. During 2011 I have been on 2 different types of medication, both with great side effects like nausea and diarrhoea, hair loss, dry skin and sleepless nights. Just the sort of thing you like to add on the top of Menopause - lol. Although I have lost 8 kgs since the end of July - not a great way to lose weight, but I suppose it is a bonus if you use the glass half full method.
Finally in late November my rhuematologist applied to the Federal Government to see if I could move to the new biological drugs, very expensive, and so to get them at a reasonable price you have to try the older drugs to see if they work. For me, they didn't. Now these new wonder drugs are not tablets or pills but you have to inject them. This is a big deal for me, I remember running around a doctors surgery once when I was a child, to avoid a flu needle - needless to say, I didn't get the needle that time. As I grew up, I can say that I gradually got over my fear of getting needles from someone else (although there is always a little bit of fear there still) and blood tests are like a walk in the park and don't worry me at all. So maybe it is the thought of something going into my body rather than out of it that is my phobia.
But giving myself a needle, well that is a whole different story. So the Doctor asked for an auto-inject pen, like an epi-pen, rather than pre-filled syringes. Like that was going to take away my fear!
So mid-December the approval came through and off my hubby went to the Chemist to get my new meds - you have to take an esky as they need to be kept cold. When he got home we discovered that they had given us the syringes even though the script very clearly said pens.
So after some jumping up and down, the chemist agreed to get the pens in. They took a week and arrived just before Christmas, and they have sat in the fridge, just waiting for me to get up the courage to use them.
Lots of people, kindly suggested having my hubby do the injections for me, but I don't want him to be my nurse, he already does so much for me, and I don't want to cross that line any time soon.
So this morning, when hubby had gone out, I took the pen from the fridge, let it get to room temperature, took off the white cap, swabbed my thigh, applied the pen and then pressed the button. It f'ing hurt like a wasp, bee, and bull ant were all biting me at the same time, not the needle but the fluid, it was like injecting acid under my skin (not that I know what injecting acid would be like but you get the drift). I was so tense about it all, I burst into hysterical sobs, but somehow I held it there until it finished. Which to be honest was only a few seconds, but even afterwards, my thigh stung for quite a while.
So I managed to do it once, now I just have to find the courage to do it again next Sunday, and the Sunday after, and the Sunday after for at least 12 weeks to see if it has made a difference.
All I can say is ... crap, this better work.
You were super brave and I really, really hope it works. Pain is so debilitating. So with you here. Some of my medication is injected - every second day. And my partner does more than enough for me without having to be my nurse before it is essential so I understand you there too. A cold pack on the site immediately afterwards helps me. And a glass of wine immediately after that. Or a chocolate. A reward anyway.
ReplyDeleteIf you want someone to talk to/whinge with, feel free to contact me. If you leave a note on my blog I will send you my email.
Well done to you. I hope the medication works for you and quickly.
ReplyDeleteOh goodness Kakka, that does sound awful - but well done on being so brave. I really hope this works for you xx
ReplyDeleteOh I do hope it works for you. I do know how the pain feels as I have trouble walking as I have arthritis in my feet. Take care.
ReplyDeleteThanks everyone for your supportive comments. It is one of the wonderful things about the blogging community, there is always someone out there that either understands because they are going through something similar, or are such wonderful caring friends that they are always supportive. Maybe a bit of both.
ReplyDeleteI love that you all see me as brave, when I see myself as a cry-baby/failure. Next week I will try and be a little stronger, or though to be honest, I am more freaked now I know what to expect.
Thanks for the cold pack tip @Elephant's Child, I will definitely try that - and the chocolate reward xxx And my doctor chose the once a week method due to my phobia. But it is doesn't work, it will be daily - yipes. I admire your ongoing courage as you fight the good fight against MS. I certainly will pop over and leave you my email address.
I don't like needles either. Sure hope it works for you. Let us know for sure.....the arthritis seems to be spreading through my body as well.
ReplyDeleteIs this a good time to tell you that super annoying saying, "no pain, no gain"? ;). I sure sure hope it works for you Kakka. You deserve a break from the pain. (I'm an old friend with a new name/blog)
ReplyDeleteUm, may be a dumb idea, but can you use the numbing cream, Emla?
ReplyDeleteAnd well done you!
I so wish I could feel the pain for you but unfortunately that is one thing I can't do. Pop and I both inject insulin (he 3 times daily and me at night) but there is virtually no pain involved for which we are thankful.
ReplyDeleteYour friends have given you some good ideas which hopefully will help. You are a very strong person and I know you will do this thing knowing the final outcome could be less pain which is what you need to happen.
The 'no pain, no gain' adage as quoted by jaak has to be the way to think of it.
We wish you well and let's hope there is a big gain in it for you. xxx
Clever girl! But ouch ...
ReplyDeleteHere's hoping it helps with the pain(s). My cousin, her young son (he's only 6) and my mother-in-law are all doing the new arthritis drugs. They are getting mixed results but mostly good. Hopefully it will be good for you too ...
Happy New Year Kakka